Friday, October 16, 2009

WE hate new TEETH!

Well after 2 days of 101+ fever at times, I had to stay home with little man today. Poor kid is miserable. While I love the snuggles it is awful when you feel like you can't do anything to make it better. I am trying to give the Tylenol a break so his body can fight off the fever/whatever it is by itself.

Two weeks ago his top left tooth broke through the skin! This week his top right tooth and the bottom left tooth (next to the cute 2 teeth he already has) broke through too! The top two are big teeth so of course it hurts! He got up this morning at 4, 5:30, and 6:30. Today for naps was 15 min. followed by a 45 min. and then 1 hour! He is happily bouncing in his chair right now. Yay. I.am.exhausted. I thought staying home with a sick kid was going to let you get stuff done while the kid sleeps. I should be reading a book and J is supposed to sleep. Not so much!

Tomorrow he has a flu shot followed by another in November. I keep thinking about how it feels like you get punched in the arm when you are an adult-how is it going to feel for little J? Sunday we are going to go take the classic "pumpkin patch" pictures. The leaves have already turned dry and cracked and brownish so the leaf pictures will not be as good. We'll see how it goes!

On another note, the newest genetic test from Baylor (I think) came out recently and Children's has some of his frozen DNA so they don't have to retest him. They told me in September that I would get more results in October so I called (I hate waiting for things like this) and I was told the two labs couldn't even agree to release/take his DNA so the test hadn't even been done yet. Well, I got a call last week that they finally agreed (who is sitting around talking about my kid's DNA and why is it so difficult to just do the TEST?!!) and we should be getting results at the end of November. This is another general (but very specific) test. We are working with a PT every week for 1 hour and an OT 2x a month for an hour. We have seen improvements but would like him to be able to do more. He is starting to figure out that therapy doesn't actually mean fun but work. The looks on his face shows it right away. He is working hard and as always he is such a strong trooper! We are so proud of him.

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